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It was a regular morning on a regular weekend day. I was busy dunking bread in my coffee and staring at the luscious green grass and trees in the yard. I love this time of the day! No one to bother me and I can be alone with my thoughts whatever they might be. Today it was planning what mall to go to and what else on my shopping list I need to buy. Then I thought maybe it might take too long to buy the things I need that it will run into lunch time so I want to be able to go to one of my favorite restaurants. Wow! Two birds with one stone! Good job Momma! Continue reading

Isaac is Home

"The things which are impossible with men are possible with God" Luke 18:27

Isaac was born 1 lb. and 4 ounces Isaac was born 1 lb. and 4 ounces

When your preemie baby comes home after spending 11 months in the hospital, it’s an exciting yet scary feeling. He doesn’t know any other world except the 4 corners of his room . Is he going to like his new room and the different sights, smells and sounds of his home? Will I be able to take care of him? One thing I know for sure was this: I won’t be driving to the hospital and spend 11-12 hours there everyday. My baby was coming home!

Speaking for myself, the best way to beat the scary feeling was to get organized. Hey, there are some things I can’t control but I can control supplies, equipment, setting up the room, and what bedsheets go on his bed! So I focused on calling the DME (that’s the medical equipment company), the nursing care agency…

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We are going home! Now what?

One of the most long awaited moments for those who have been in the NICU for any amount of time is the moment when the doctor says “we need to talk about discharge”. Finally, you get to leave this place whose halls and walls you have called your second home. But going home presents another obstacle. How are you supposed to bring your trached, vented and tube fed baby home? There are some things you need to accept and get ready for right off the bat. The experience is overwhelming for all parents! It does not matter what kind of degree they have or how old they are. It is challenging, period! Next, you need to have your head on right.If you need a notebook/binder to keep notes of all the things you are going to need or want to do by all means do it! No one is going to judge you! Having had the experience of bringing my son Isaac home more than a year ago, let me break everything down. This post is all about bringing a trached, vented and gtube baby home! Continue reading

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To Trache or Not to Trache

In the bouncer!

In the bouncer!

I have been skating around this topic for a while now. My friend mentioned that this should have been one of the very first articles I should have written about. But you know, it’s a very sensitive topic  and I want to be able to talk about it objectively. Which I can’t promise because when it comes to a loved one it is hard to think objectively.

I believe that no one can convince someone else to trache their child. I don’t care how persuasive you are or how many arguments you hear for or against it. In the end, you just have to reach that point when you think that that is the best decision you can ever make. Continue reading