Isaac is Home

"The things which are impossible with men are possible with God" Luke 18:27

Isaac was born 1 lb. and 4 ounces Isaac was born 1 lb. and 4 ounces

When your preemie baby comes home after spending 11 months in the hospital, it’s an exciting yet scary feeling. He doesn’t know any other world except the 4 corners of his room . Is he going to like his new room and the different sights, smells and sounds of his home? Will I be able to take care of him? One thing I know for sure was this: I won’t be driving to the hospital and spend 11-12 hours there everyday. My baby was coming home!

Speaking for myself, the best way to beat the scary feeling was to get organized. Hey, there are some things I can’t control but I can control supplies, equipment, setting up the room, and what bedsheets go on his bed! So I focused on calling the DME (that’s the medical equipment company), the nursing care agency…

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We are going home! Now what?

One of the most long awaited moments for those who have been in the NICU for any amount of time is the moment when the doctor says “we need to talk about discharge”. Finally, you get to leave this place whose halls and walls you have called your second home. But going home presents another obstacle. How are you supposed to bring your trached, vented and tube fed baby home? There are some things you need to accept and get ready for right off the bat. The experience is overwhelming for all parents! It does not matter what kind of degree they have or how old they are. It is challenging, period! Next, you need to have your head on right.If you need a notebook/binder to keep notes of all the things you are going to need or want to do by all means do it! No one is going to judge you! Having had the experience of bringing my son Isaac home more than a year ago, let me break everything down. This post is all about bringing a trached, vented and gtube baby home! Continue reading

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To Trache or Not to Trache

In the bouncer!

In the bouncer!

I have been skating around this topic for a while now. My friend mentioned that this should have been one of the very first articles I should have written about. But you know, it’s a very sensitive topic  and I want to be able to talk about it objectively. Which I can’t promise because when it comes to a loved one it is hard to think objectively.

I believe that no one can convince someone else to trache their child. I don’t care how persuasive you are or how many arguments you hear for or against it. In the end, you just have to reach that point when you think that that is the best decision you can ever make. Continue reading

Doctor’s Appointment with Baby on a Vent

One of the things that was a source of anxiety when we went home was going to a doctor’s appointment. We go by ambulance but it was still something unknown to me.

I found out that preparing for it was half the battle. My nursing agency has a “Go Bag”. It’s a bag with all the essentials you might need in an emergency. Continue reading

Being OCD is Okay

Back up oxygen tank in the corner of the room

Back up oxygen tank in the corner of the room

 

 

So, my husband and I decided that I should stay home with Isaac. He comes first. We had a hard time before we had him that it really makes sense to protect someone so precious! We will have to make sacrifices along the way, but who doesn’t when they have children?

I have 24 hour nursing so I have two 12 hour shifts. Despite this, I am still in Isaac’s room with him, Continue reading

Trache Change

This was taken a couple of months before we got discharged from the NICU

This was taken a couple of months before we got discharged from the NICU

Trache change is something that I practiced on when Isaac was still in the NICU. The doctors and nurses, especially the respiratory therapists were adamant that I be the one to change his trache every time the change was necessary. It could be because of some respiratory infection he got or he needed to get a bigger or longer one based from a bronchoscopy they have performed. I probably have have changed his trache 2-3 times before coming home.

When we got home, I suddenly had this fear of changing it myself. I had to rely on my nurses to change it for me. Of course they did but there was a couple of times that the change got tricky and I began to think that there might be something wrong with the stoma. We did a scheduled emergency room visit so that one of the ENT doctors could change it for us. Everything went well and his doctor told me there was nothing wrong with his stoma. So, when we had a check up visit with the same doctor a month later I brought my new trache with me. I told the doctor that I had to take charge of my fear because I am mom and moms need to be brave for their children. I wanted to do it when he was around so that I could focus on changing it and not concentrate on my fear. The trache went in without incident and we went home. I felt thankful and blessed that God gave me the strength to carry on and not falter during the change. Now I feel that I am able to do it with the help of one of my nurses when the time comes.