Decanned and Ready to go to School!

Isaac got decannulated on September 28, 2018. The progress he has made since he got decanned was really impressive, by Isaac standards of course. He always takes his time in doing anything. We went to school on a Friday. Got sick like a dog with flu on saturday and missed two weeks of school. If…

Stand With Me Daddy

Stand with me daddy, And hold my hand tight. My future is before me, I need to know I will be alright. Stand with me daddy, As I go forth into the world. I remember the values you have taught me Yes, they have taken their hold. Stand with me daddy, When I make tough…

Grandma’s Poem

( This poem was written by my mother-in-law Dr. Lydia Lalunio. It is written in my native language. I will endeavor to write a translation later. Thank you!) Meme na Bunso Meme na bunso Sa iyong kuna Pagod si Nanay Sa pagbabantay Di alintana Pagod, puyat niya Lakas hinuhugot Sa Poong Maykapal. Sa buong magdamag…

The Meaning of Life

Wow! Such big words! It’s not as profound as you might think. Nowadays, with everything that is going on in the world, around us, and in our own lives, we have to be able to find meaning in our day to day routine. In fact, just being able to go about our day has meaning…

Setbacks…

For lack of a better title for this post, I wrote “Setbacks…” as in the plural form. We brought Isaac to the emergency room on April 2, Sunday, the day of his party and just a day before his birthday. We got admitted and had to stay until Thursday of that week. It was the…

Two Years Home!!!

Today marks the two years since we came home! We only had one hospitalization where we stayed overnight and it was really because of a tricky trache change and I was being a scaredy cat! We have gone through so much as a family since Isaac was born at 25 weeks on April 3, 2014….

Trache Life and Change

Being a parent of a child with a trache is fraught with change. From the actual condition of our children to changes in DME companies to nurses. Everything is subjected to change

January6, 2017

We are getting started weaning Isaac off the vent at night. He was off vent since morning of  Tuesday January 3rd and made it up until this morning.

Along Came Isaac…

It was a regular morning on a regular weekend day. I was busy dunking bread in my coffee and staring at the luscious green grass and trees in the yard. I love this time of the day! No one to bother me and I can be alone with my thoughts whatever they might be. Today…