Receiving a diagnosis of a rare trisomy turned our world upside down. We had no clue of the topsy turvy rollercoaster we’d embark on. We had no clue of how hard we would cling to God and how life-long friends would be made. There’s no preparation for the possible demise of your child. We are one of the fortunate ones. A family who left the hospital WITH their child. A family who fought for fair care.