Learning Difficulties of a Trached Child

My son is 2 years old and 10 months. Isaac is off the home ventilator all day and is starting to wean from the ventilator at night. He is trached and also has a g-tube for eating. He is non-verbal, mobile but not walking yet and is just beginning to do some tasting with his…

Decanned and Ready to go to School!

Isaac got decannulated on September 28, 2018. The progress he has made since he got decanned was really impressive, by Isaac standards of course. He always takes his time in doing anything. We went to school on a Friday. Got sick like a dog with flu on saturday and missed two weeks of school. If…

Stand With Me Daddy

Stand with me daddy, And hold my hand tight. My future is before me, I need to know I will be alright. Stand with me daddy, As I go forth into the world. I remember the values you have taught me Yes, they have taken their hold. Stand with me daddy, When I make tough…