In the Midst of RSV Season: Humanity in the PICU (Pediatric Intensive Care Unit)

Pediatric intensive care nurses are in a league of their own. I have witnessed first hand the compassion and empathy they have shown us and my son. It made me wonder what they have to do to prepare themselves before they go to work. A lot of them are young nurses, at varying stages in their life and career. Most with children of their own. Being an adult with responsibilities is already challenging. How could they carry our burden as well? They have life-saving protocols and procedures they have to learn and apply in their work everyday. Nursing has evolved so much and in my humble opinion as important as the doctors that they work alongside. They do their best to advocate for their patients every single day they show up.

Learning Difficulties of a Trached Child

My son is 2 years old and 10 months. Isaac is off the home ventilator all day and is starting to wean from the ventilator at night. He is trached and also has a g-tube for eating. He is non-verbal, mobile but not walking yet and is just beginning to do some tasting with his…

Decanned and Ready to go to School!

Isaac got decannulated on September 28, 2018. The progress he has made since he got decanned was really impressive, by Isaac standards of course. He always takes his time in doing anything. We went to school on a Friday. Got sick like a dog with flu on saturday and missed two weeks of school. If…