My son is 2 years old and 10 months. Isaac is off the home ventilator all day and is starting to wean from the ventilator at night. He is trached and also has a g-tube for eating. He is non-verbal, mobile but not walking yet and is just beginning to do some tasting with his…
Author: Isaac's Mom
Former educator and Mom to Isaac. The purpose of this blog is to reach other parents out there to let them know there is hope. That the only way to live this life is to to take one day at a time. Just put one foot forward and we will all get to where we want to be.
Decanned and Ready to go to School!
Isaac got decannulated on September 28, 2018. The progress he has made since he got decanned was really impressive, by Isaac standards of course. He always takes his time in doing anything. We went to school on a Friday. Got sick like a dog with flu on saturday and missed two weeks of school. If…
Stand With Me Daddy
Stand with me daddy, And hold my hand tight. My future is before me, I need to know I will be alright. Stand with me daddy, As I go forth into the world. I remember the values you have taught me Yes, they have taken their hold. Stand with me daddy, When I make tough…
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